As somebody with Celiac disease who is a future pediatrician (and parent, I hope!), I felt compelled to comment on this article.
What do you all think?
Here's my comment to the New York Times:
I'm a medical student with Celiac disease and a future pediatrician. I have come across many families who decide their children should eat gluten free, whether for behavioral issues, autism-spectrum disorders, or GI symptoms. Unfortunately, we don't know yet whether a gluten free diet is efficacious in helping with these conditions because the research is lacking. I've heard stories about non-Celiac children who, once sickly, are now thriving on a gluten free diet. While this may be placebo effect, I believe it is possible that a gluten free diet may be helpful in alleviating some symptoms in some children.
I was fortunately diagnosed with Celiac disease as an adult. But going gluten free for a child is a completely different ballgame, with gluten prevalent at school and birthday parties, in Play-doh, etc. I fear that some parents will decide to put their child on a gluten free diet for health reasons without fully understanding the meaning of gluten free. I've had many discussions with people who think that "gluten free" means that the food is a healthier choice, a tagline somewhat akin to "vegan," or "organic". Going gluten free is a tremendous sacrifice for anybody, and for a child, even more so. It is dangerous to create false allergies for our children, unnecessarily putting them in the sick role.


Hi Katherine,
ReplyDeleteI appreciated your comment on the NYT site, and was pleased to see you're at Stanford. My 22-year-old celiac daughter will celebrate her 21st diagnosis day next week, in fact. But before she was diagnosed (at Packard), she nearly died of malnutrition. I wrote about her - and our - ordeal for Newsweek back in 1992. Here's a link to the piece (sorry about missing apostrophes etc.): http://www.thedailybeast.com/newsweek/1992/04/05/whats-wrong-with-our-baby.html
I was persona non grata at Stanford with some physicians; others told me they changed the way they practiced medicine because of my essay.
Molly graduated from the University of Puget Sound last May with a degree in Chemistry. She's active in the celiac community, and continues to volunteer as a counselor at Camp Celiac through the Taylor Family Foundation in Livermore, though she lives near Boston now. I live on campus and also follow a gluten-free diet. Let me know if you'd like to meet for a GF lunch somewhere!
Best,
Debbie Duncan
debbie@debbieduncan.com